Our aim is for SSNAP data to be used as widely as possible to improve the quality of care for people with stroke. 

The Healthcare Quality Improvement Programme (HQIP) are the data controllers for SSNAP, and as such, it is HQIP who would assess whether we can provide this SSNAP data. Initially, please complete a SSNAP data request form. We provide two types of data from SSNAP and therefore two different forms: 

Aggregate data: data at the level of an individual hospital or team. For aggregate data that is not already published publicly, researchers will need to fill in the “Aggregate data request form”.

Download aggregate data request form

Anonymous patient level data: data at the level of individual patient but does not include any personal information, such as name, date of birth, address or NHS number. Researchers will need to complete the “Patient level application form".

Download patient level application form

In this form you provide details of the research, including the context, methodology, funding, and researchers involved in the project. Once the Stroke Programme receives this form we will consider if it is technically sound and whether we have sufficient information to proceed with the request process. Please note that form review is currently taking at least 6-8 weeks. 

To support completion of your form, please review the SSNAP core dataset and the data dictionary (also referred to as Import/Export specification):
 

SSNAP clinical datasets

SSNAP data dictionary

 

If it is accepted you will then need to complete a request to HQIP by completing and submitting both a Data Sharing Agreement and Data Access Request Form (DARF) to be considered by the Data Access Request Group (DARG) at HQIP. The form is available to download from the HQIP data sharing webpage. This form must first be returned to SSNAP for consideration and signing, before it is then submitted to HQIP.

Further information is available on the HQIP data sharing webpage, including a document produced by HQIP providing guidance for applicants.  

The Data Access Request Group (DARG) at HQIP meet once every month to consider each application. Details of the meeting, submission deadline and outcome dates are available on the HQIP data sharing webpage. Please be aware that if the applications are successful, there will be fees attached to data sharing. 

If you have further preliminary queries regarding your data request, such as discussing the consent form, we recommend you contact HQIP directly by emailing datasharing@hqip.org.uk. 

If you have any questions for SSNAP, please contact ssnapdatarequests@kcl.ac.uk. 

For an overview of the process and timelines, please view this flow chart: 

 Data request flow chart 

For further information, please see:
  

Data request FAQs

Accepted aggregate data requests