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Patients, Carers, & Public > How is data collected, stored, and used by SSNAP?

Patients, Carers & Public Area - How is data collected, stored, and used by SSNAP?

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How is data collected & stored by SSNAP?

SSNAP collects information about stroke patients’ care from when they first arrive in hospital up until 6 months after their stroke. Data is submitted directly to SSNAP by the clinical teams who treat stroke patients in those first 6 months (hospitals, community services, etc.). The area of the SSNAP website where data is entered can only be accessed by registered staff at relevant healthcare organisations. Staff must have a password and they must agree to terms and conditions that protect patient information. Data is submitted via a secure website run by a host company called Net Solving Ltd. There are many processes in place to make sure that the SSNAP team and Net Solving Ltd don’t see confidential patient information.

For more information about how SSNAP collects and shares data securely, you can download the SSNAP Fair Processing Statement using the button below or visit the governance section of the snap website.

How is my data used by SSNAP?

The SSNAP team at King’s College London (KCL) process the submitted data and create reports which show how well each hospital or stroke team is performing. This analysis is anonymised, meaning the SSNAP team does not see your confidential information. For more information about reports, please see our reports page.

Will my SSNAP data be published in reports?

Patient-level data are not published in SSNAP reports. SSNAP report aggregate-level data for each hospital or community service team. Aggregate-level data means SSNAP publish summary statistics for all the patients treated by that team. For example, one summary statistic published by SSNAP is ‘the percentage of all the patients that were treated by a hospital team that required speech and language therapy’. In addition to hospital and community team-level results, SSNAP also publish aggregate-level data for all of England, Wales & Northern Ireland (population-level data).

What would happen to my data if SSNAP was to be ended?

If SSNAP was to be ended, SSNAP’s data controller (HQIP) would usually request that all data collected is anonymised and returned to HQIP at the end of the contract. All data processors would be required to delete the data held at the end of the contract, unless agreed otherwise with HQIP, and appropriate permissions were in place.

Page last reviewed: 25 March 2021 
Next review due: 25 March 2022
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