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Patients & Public > How is data collected, stored, and used by SSNAP?

Patients, Carers & Public Area - How is data collected, stored, and used by SSNAP?

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How is data collected & stored by SSNAP?

Hospital and community stroke care teams collect data about the care their patients receive in the first 6 months after their stroke. Teams submit this data to SSNAP  via a secure website. The area of the SSNAP website where data is entered can only be accessed by registered staff at relevant healthcare organisations. Staff must have a password and they must agree to terms and conditions that protect patient information. The secure website where data is submitted is run by a host company called Net Solving Ltd. There are many processes in place to make sure that the SSNAP team and Net Solving Ltd. do not see confidential patient information.

For more information about how SSNAP collects and shares data securely, you can download the SSNAP Fair Processing Statement using the button below or visit the governance section of the SSNAP website.

How is my data used by SSNAP?

The SSNAP team at King’s College London (KCL) process the submitted data and create reports. The reports show how well each hospital or stroke care team is performing. This analysis is anonymised, meaning the SSNAP team does not see your confidential information. For more information about reports, please see our reports page.

Will my SSNAP data be published in reports?

Patient-level data are not published in SSNAP reports. SSNAP report aggregate-level data for each hospital or community service team. Aggregate-level data means SSNAP publish summary statistics for all the patients treated by that team. For example, one summary statistic published by SSNAP is ‘the percentage of all the patients that were treated by a hospital team that required speech and language therapy’. In addition to hospital and community team-level results, SSNAP also publish aggregate-level data for all of England, Wales & Northern Ireland (aggregate population-level data).

What would happen to my data if SSNAP ended?

If SSNAP ended, SSNAP’s data controller (HQIP) would usually request that all data collected is anonymised and returned to HQIP at the end of the contract. All data processors would be required to delete the data held at the end of the contract, unless agreed otherwise with HQIP, and appropriate permissions were in place.

Page last reviewed: 20 June 2021 
Next review due: 20 June 2022
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