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Patients & Public > Groups and organisations

Groups and Organisations

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Meet the groups and organisations working with stroke patients around the UK.

Stroke Organisations by Geography

The Stroke Association (United Kingdom)
The Stroke Association provide information, support, and advice for stroke survivors. They also fund critical research and campaign to make sure people affected by stroke get the very best care and support to rebuild their lives. 
Contact Page - Stroke Association

Northern Ireland Chest, Heart & Stroke (NICHS)
NICHS support the rehabilitation of stroke and cardiac patients through a network of 47 clubs based throughout Northern Ireland. NICHS also fund stroke research and campaign for improvements in the care and treatment of stroke patients. 
Contact Page - NICHS

Chest, Heart & Stroke Scotland (CHSS)
CHSS support people in Scotland affected by chest, heart and stroke illness through medical research, advice and information campaigns, and support in the community. 
Contact Page - CHSS

Stroke Alliance for Europe (SAFE)
SAFE are an alliance of patient organisations from European countries. SAFE aim to reduce the number of strokes in Europe by supporting campaigning, education and research into stroke prevention and recovery. 

European Stroke Organisation (ESO)
ESO aims to improve stroke care in Europe by providing medical education to healthcare professionals and the public. 

World Stroke Organisation (WSO)
WSO are recognised by the WHO as the leading global stroke body. They work alongside international healthcare organisations to develop policies, guidelines, education campaigns, and research around the world. 

You can find support services or clubs and groups in your local area on the Stroke Association Support Services webpage.

 

Getting More Help

Different Strokes 
Different Strokes is a charity run by younger stroke survivors to provide support, services, and information for working-age stroke survivors.
Click here for Different Strokes' list of useful group and websites for stroke survivors.
Contact Page - Different Strokes

AgeUK
Age UK offers advice, information, and services for older people. 
Contact Page - Age UK

Headway
Headway provides specialist support, information and services to brain injury survivors and their families and carers. 
Contact Page - Headway

Aphasia Alliance
Aphasia Alliance is a coalition of key organisations from all over the UK that work in the field of aphasia. You can find the list of the organisations in the Members & Links section of their website.

Aphasia Reconnect and Say Aphasia
Aphasia Reconnect and Say Aphasia offer a relaxed place of support for people who have aphasia and their families, they run drop in groups and a befriending scheme. Say Aphasia hold online video chats over zoom and have a UK-wide aphasia WhatsApp group. 
Contact Page – Aphasia Re-Connect
Contact Page - Say Aphasia

British Aphasiology Society (BAS) 
BAS is a national interest group that promotes research into aphasia and the development of clinical services for people with aphasia. 

Dystonia UK
Dystonia UK is a national charity dedicated to helping people affected by dystonia. They produce a comprehensive magazine ‘Dystonia Matters’, which you can download on their website.
Contact Page - Dystonia UK

Diabetes UK 
Diabetes UK support people with diabetes by funding research, campaigning, and helping people live with the condition. 
Contact Page - Diabetes UK

National Tremor Foundation
The National Tremor Foundation offers information and advice and runs support groups for people living with tremor and their carers. 
Contact Page – National Tremor Foundation

Atrial Fibrillation Association
The Atrial Fibrillation Association offers information and advice for people living with atrial fibrillation. Their ‘Know your Pulse’ campaign offers practical advice on how to check your pulse whilst providing other important information on managing atrial fibrillation. 
Contact Page - Arrhythmia Alliance Group

British Brain and Spine Foundation 
The British Brain and Spine Foundation provides support and information to people affected by disorders of the brain and spine. 
Contact Page – Brain and Spine Foundation

Royal National Institute for the Blind (RNIB)
RNIB provide help and support for blind and partially sighted people. 
Contact Page - RNIB

 

SSNAP Steering Group Organisations

SSNAP is overseen by the Intercollegiate Stroke Working Party (ICSWP). This comprises members from healthcare professions in the stroke care pathway; as well as the voluntary sector and patient representation. 
Click here for more information about the ICSWP.

The groups listed here are represented on the ICSWP:

Northern Ireland Multidisciplinary Association for Stroke Teams (NIMAST)
NHS Wales Stroke
NHS England Stroke
Stroke Association
Association of British Neurologists
British Geriatrics Society
British Association of Stroke Physicians
Royal College of Nursing
King’s College London Stroke Programme
Royal College of Occupational Therapists / Special Section Neurological Practice
British Society of Neuroradiologists
College of Paramedics
Royal College of Speech and Language Therapists
British Dietetic Association
Royal College of General Practitioners
Health Economics
British Society of Rehabilitation Medicine
Society for Research in Rehabilitation
British Psychological Society
British and Irish Orthoptic Society
Healthcare Quality Improvement Partnership (HQIP)
Royal College of Radiologists
Getting it Right First Time (GIRFT)
 


If any of the links on this page aren't working, please email ssnap@kcl.ac.uk for advice. 

Please note, we have chosen the above sites because we think they will be useful for stroke survivors and the public, we are not directly responsible for any of the sites listed. If you have any recommendations of organisations to add to this list, please email your suggestions to ssnap@kcl.ac.uk.



 

Page last reviewed: 20 June2021 
Next review due: 20 June 2022

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